If you are reading this, you are probably either one of my family, or a friend. Either way, you probably know already what this blog is about. But, if you don’t know me personally, or you don’t have any idea what this blog is about, then read on.
I was diagnosed with scoliosis in February this year.
Although for the last month or two beforehand I had noticed that my waist and hips were uneven, I hadn’t really thought much of it, and it wasn’t until my mum saw my back one day that I really realised that there was a problem. Mum has mild scoliosis herself, so she knew what was wrong with my back. The GP confirmed that it was indeed scoliosis, and I quickly had xrays which were then sent on to Starship Children’s Hospital, and the scoliosis specialist there.
Despite the first batch of xrays being lost, I got an appointment for an MRI scan fairly quickly, mostly due to the fact that my mum kept on ringing the hospital up to remind them I was still waiting. We could see that my curve was progressing very quickly, and it was very difficult to wait patiently.
I had the MRI in April to confirm that there was no underlying cause for my scoliosis, and everything was fine. When the surgeon finally saw my xrays he put me on the Class A priority list, which made me feel pretty smug. At least we hadn’t been ringing up about nothing!
In late May, I finally got to see Mr Haemish Crawford, the scoliosis specialist up at Starship. He measured my curves at about 75 and 42 degrees, and told me that I would need surgery. This wasn’t really a surprise to me, as I had been doing a lot of research, and knew that my curves were pretty big. This is one of the xrays I had taken that day:
Once I knew I needed surgery, all I wanted to do was get on with it. Unfortunately, with the long waiting list for this type of surgery, nothing happens quickly, even though the surgeon had said that it would be this year sometime. At first we thought my surgery would be in October, and so I prepared myself for recovering in the fourth school term. However, my surgery is now scheduled instead for December 13. Although that is a bit later than we originally thought it would be, time has flown by, and it is now only 13 days until that date. I’m getting a bit nervous, but I’m still excited for the end result.
At my last appointment in October, my curve was measured at about 88 degrees, with fairly severe rotation. I actually have two curves, but the lower one is much more severe than the top, which is just a compensatory curve. This means that, when the bottom curve is straightened, the top one should straighten of its own accord. Because of the stiffness of my curve (which was shown on some side-bending xrays I had done), the surgeon is going to do two procedures instead of one. First of all he will go through my side (the anterior approach), remove a rib and collapse the lung on that side so he can get to the front of my spine, and then remove disc material from from the stiffest part of the curve, so that it will straighten more easily. After he has done that, he will then go through my back and carry out a normal posterior fusion, probably from about T7 to L4.
So there are 13 days to go until surgery. I can’t wait… although, thinking about it, I’m actually dreading it all as well.